Thanks for sharing the link to the awareness site; I didn't really understand the nature of what you're battling, and now I have a better idea.
It's comforting to know that there are insurance warriors out there who help fight the good fight. A few years ago I had surgery on my gut for diabetes which was considered experimental by most insurance companies, so my surgeon and GP had to fight and fight to get it approved. It was battled for over a year, but I didn't wind up having to pay much out of pocket. I was living in Delaware at the time, and my doctor (and surgery) were in NY... so I feel ya with the out of state thing, too.
The best news is that you are in great shape and otherwise very healthy (from what I know, anyway), so you are poised to kick this thing's ass.
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Date: 2007-05-21 11:31 pm (UTC)It's comforting to know that there are insurance warriors out there who help fight the good fight. A few years ago I had surgery on my gut for diabetes which was considered experimental by most insurance companies, so my surgeon and GP had to fight and fight to get it approved. It was battled for over a year, but I didn't wind up having to pay much out of pocket. I was living in Delaware at the time, and my doctor (and surgery) were in NY... so I feel ya with the out of state thing, too.
The best news is that you are in great shape and otherwise very healthy (from what I know, anyway), so you are poised to kick this thing's ass.
If you wanna chat, call anytime.