PMP article

huh. the seattle p-i has an article about a guy who had PMP (pseudomyxoma peritonei. he had the cancerous variety). added later: PMP is the more advanced stage of the condition i was diagnosed with last summer ( i had a mucinous cystadenoma of the appendix, with micro-perforation). i have written to the reporter who wrote the article, to let her know that there are, in fact, doctors in seattle who treat this cluster of conditions. the thrust of the article is how frustrating and confusing it is to be dealing with an extremely rare condition, especially one for which the treatment is so invasive and gruelling. well, i can attest to that. there are no statistics, no signposts, to help any of us make decisions about our own treatment. last summer i was presented with a spectrum of options...i chose the least invasive option, for the moment, but who knows if this is the most prudent option? nobody knows. nobody can tell me anything. most of the info on the web is about people with either signet ring cell cancers of the appendix, mucinous cystadenocarcinomas of the appendix (the cancerous variety of the tumor i had), or cancerous PMP. there is virtually no information on the web about mucinous cystadenomas of the appendix, and the likelihood of developing PMP from such a tumor. i don't even know if a mucinous cystadenoma is a precursor of a mucinous cystadenocarcinoma, and thus a precursor to a cancerous PMP.

here's a link to the article, if you're interested in reading about it. the article itself isn't that informative, but the links to the PMP awareness site at the end of the article are helpful.